This Crazy Life

I think we are settling into a routine, an exhausting routine, but a routine none the less.  We’ve now had a couple of dinner passes, and she has a dinner pass for Saturday and Sunday both.  They haven’t gone amazing, but we’re home, and she’s eating.  I really like McCallum Place.  The communication is top notch.  I like her team.  She likes her team.  It’s really small.  Currently she’s the only patient in 10-hour php so there are quite a few times when it is just her.  Today they watched Hocus Pocus 2.  Yesterday she played games and did things with a different dietician there and spent a lot of time with her therapist.  They are making it fun but engaging her all at the same time.  We had our first family therapy session last Thursday.  I told them that I think she says different things to them than she does to me.  She pretty much agreed.  She wants to say what they want to hear because she wants out so she can start restricting again.  Her therapist talked about how honesty was good because she could meet her there and work from there.  No reason to work on recovery, if you aren’t even thinking about recovery yet.  So, we’ll keep working, and keep feeding her.  They’ve done a lot of different labs no one else has ever looked at.  They also ordered a bone density scan.  The results weren’t as bad as I thought they might be, but the doctor also discussed them with her and how they are borderline, so we need to keep fueling her body, so they don’t get bad.  She heard I’m not sick enough I could be worse.  Fun times!  But I think it’s good to be honest with her because she doesn’t want to die.  So hopefully somewhere she is hearing the words and not just the ED who twists everything to fit its agenda.  I made a list of all the negative things about ERC today.  I am not sure we’ll go back to our old outpatient team but I want to meet with them at least once so they can understand how horrible that place was and how wonderful McCallum has been in contrast.  I owe it to other families that may get the same crappy advice from them.  But for now, I need to start dinner.  Wish me luck!