This Crazy Life

We met with her doctor yesterday.  I really like her and think she completes our team well.  She doesn’t believe residential is the answer and will do everything she can to help keep her at home.  I know weight helps a lot of kids and you just add weight, and they can work for recovery.  But it does not help all kids.  There are other kids like Carrigan that just adding weight doesn’t do anything and puts you in this continuous cycle.  So, we’re trying to stop the cycle and just remain.  Remain stable.  She’s not concerned that she’s not doing anything.  She thinks with time we can make improvements.  She had a patient that was very similar to her for 6 years, then finally in her 7^th year she started making progress and is now doing very well in recovery.  I like the idea of that.  But I also have no idea how we hang out in this land of limbo for 6 or 7 years.  Sometimes I’m not sure we can survive another day.  But I guess we take it hour by hour or even minute by minute as the need arises and we’ll all learn to coexist again.  We discussed her labs from last week, everything was ok.  Ok enough that she was good with waiting for her to come back in 2 weeks.  Her white blood cell count is low.  Not horrible and in fact it wasn’t as low as it was in January the last time it was tested.  And her female hormones are nonexistent, but again this is no surprise.  But we’re stable and she sees no problems doing what we’re doing and keep at it for the time being.