This Crazy Life

She’s been in school for 2 weeks.  2 entire weeks.  Somedays have been better than others.  In fact one day was pretty downright ugly.  But we’re making it.  We fried some fish for dinner one night this week.  She of course didn’t eat it, but then that stopped her ability to walk into the kitchen.  Oil is a huge fear food.  She couldn’t eat.  Her food was ruined.  Before this would have been a plummet straight down the hill.  We still slipped, but we climbed back up, we ate some more food and we continued about our way.  I told her I would meet her where she was and I would keep trying this as long as we could.  So we’re going to commit full force in making this work and I’ll do whatever I can to help support her.  I just wish life was easier for her.  I wish she could eat.  I wish food wasn’t this awful enemy.  I wish she would eat more.  Today she couldn’t go to school until later as they were getting a snack in her 2^nd hour class for getting the best class score on their most recent test.  She didn’t know what the snack was going to be and she couldn’t eat it.  So we stayed home.  Then she willingly went.  So I’m still calling it a win.  I’m learning to be patient.  I’m learning not to push.  I’m learning to say this is ok for now.  Science, medicine and technology come a long way.  Maybe in the future we’ll have better ways to treat.  Medicines that can actually help.  Maybe we’ll discover a key to help treat these people.  So until then, I’m going to let her enjoy life as much as she can because who knows how long she has to enjoy it?