We’re becoming regulars. Again. And I’m back to not knowing what to do. Do you keep her home. Do you try residential again. This last time we came home on a feeding tube. However, their was a problem getting supplies so she’s taken it out while we wait and we’re going to end up back in the hospital. And no one really cares at the DME company. They don’t understand she literally can’t eat without the supplies. Her days are 100% consumed by laundry. Over and over again. Laundry. She wants a washing machine/dryer in her room. And we are seriously considering it. So maybe she doesn’t have to waste all her time doing laundry. But then what will be the next obsession. I can’t imagine we’ll get lucky enough not to have one. But if this is going to last year and if my goal is to keep her at home as much as possible does it make sense to just do it? I wish someone had an answer and could see into the future and know that it’s the right answer. That it’s the best answer. That I’m not going to regret it. Or that I shouldn’t do it. And we’re not going to be dealing with this for the rest of her life and she’s going to be ok someday. The other girls had friends over last night and listening to them laugh and have fun. It’s so hard. It makes me think more about residential. Do I keep pushing and pushing hard so she can have a life again. Will she ever have that life? Will pushing help? Will it make it worse? Ugh. Why are there so many questions and no answers. None.
crazylife2022
Leave a comment