This Crazy Life

We had a bone density scan today.  And in less than 3 hours I had an email from her doctor with results.  So, you can imagine they were the best results.  All of her results had worsened in the past year, most notably her spine.  Which is where her doctor said you see the most bone loss from eating disorder.  She said she would be classified as having osteoporosis if she had 2 fractures with the z-score she had.  But since she didn’t have the fractures yet, she wasn’t there.  But she is very concerned about her bone health and if we can’t get some more weight on her in the next few months, they want to refer her to the bone doctor if not sooner.  Tomorrow I’ll be able to read the full report.  But her doctor started talking about increased nutrition and gaining weight and bisphosphonates which have undesirable side effects – which I looked up and they are GI problems, acid reflux, ulcers, etc.  Things she definitely does not need.  I emailed her doctor and said I would talk to her, and we would talk more all together at her next appointment.  She of course is freaked out.  She’s not eating more.  She can’t eat more.  She can’t gain weight.  Her body image is all ready so bad.  It’s going to make her all stop eating.  She’s worried I’m doing something to her food or things now.  She doesn’t want me to tell anyone, including her dad and grandma, because she doesn’t want them thinking about doing things to her either.  So essentially, I get this information all to myself.  For a month.  Which I know nothing we can do can change it.  She’ll eat or she won’t.  I wasn’t surprised that the results had gone down.  She wasn’t in any kind of treatment this year, so she never had an extended period of nutrition.  And even though she’s been maintaining she’s been on the lowest end of maintaining for the last 5 months now!!!  The exclamation points were to realizing we’ve been out of the hospital for 5 months now.  And counting!