This Crazy Life

She’s gained enough weight.  She’s past her set point.  If she gains any more, she’s not going to be able to do this at home.  She’ll have to lose weight.  But if she can come home now, she will eat at home to maintain.  Nothing more.  She’ll eat when she’s hungry and stop when she’s…

Monday she started running a fever.  Tuesday she felt awful.  Tuesday evening she tested positive for Covid.  So she’s now isolated in her room until Sunday.  She says it’s the worst she’s even felt and the most pain she’s ever been in.  Everything hurts.  They are keeping her fever down and pain in check by…

I think the most dreaded 4 letter word in the history of parents.  Lice.  Just saying it makes my head itchy.  Friday, they discovered a lice outbreak at residential.  I never really thought about it until I got the phone call, but really, I would guess we’re lucky that we’ve never had to deal with…

Yesterday I got to meet with her dietician and therapist both.  For almost an hour.  It was nice.  One of the things we talked about was her dietician’s special snowflake theory.   These kids understand the concepts and can apply them to other people, but they don’t apply to them.  They are special snowflakes.  Like my…

I saw a couple of posts yesterday on a Facebook group that really stuck out to me about medical PTSD and being a survivor.  A lot of days I feel weak.  I feel like a failure.  I haven’t been able to get my daughter to get better.  I’m not strong enough.  Another person could have…

I hate that she gets home sick.  I got home sick as a child.  Heck, I still get home sick as an adult.  And it is no fun.   I wish I could rescue her.  I wish I could keep her safe at home.  I wish this disease didn’t have such an awful hold on her. …

They tell you comparisons can be strong in ED treatment.  We’ve never had a huge issue with it, until yesterday.  A new patient came and instantly started making comments to my daughter.  Do you count calories or just totally restrict?  Have you been in the hospital for not eating?  I think you’re worse than me. …

We had our first family therapy at Clementine.  They are trying to help her see a life without her eating disorder.  Help her find herself.  Discover who she is.  They started with wanting her to imagine a happy day.  Is your eating disorder there.  Yes.  Of course.  Then we went 10 years in the future. …

The debate over taking medicine continues.  She is 100% against it.  Everyone else thinks it will help.  She’s now refusing to take anything from nursing including extra water to help with her dehydration, vitamins, miralax and of course Prozac.  It’s her eating disorder and she’s not doing it.  They may take away privileges to try…

Clementine only supplements with room temperature, vanilla, ensure plus.  She does not like this.  She does not like this so much, that so far, she’s completing 100% by food.  We have never completed 100% by food.  Anywhere.  She’s eating food she’s not eaten for years.  She ate Mexican at a restaurant last week.  She commented…