This Crazy Life

I was watching a video yesterday, about anorexia, because what else would I be doing.  They were talking about new thoughts around exercise/movement and letting kids move earlier than originally thought.  Movement can be good for your mental health and help decrease anxiety.  I understand this.  We’ve been very hesitant to let her move because…

We’ve been in 6-hour PHP for just over a week now.  And she’s completed dinner approximately 0 times.  The last 3 nights have been complete refusals.  I had to take her twin sister to Minnesota for a cheer competition this week.  Not had, but I wanted to, I missed most of her cheer comps last…

As our time in McCallum’s PHP is coming to an end, we have worked to establish an outpatient team.   We met with a dietician this week that came highly recommended.  My daughter wanted me to stay in the session the entire time.  She wants to exercise.  The dietician asked how she was doing with her…

We’re getting ready to step down from 10 hour to PHP to 6-hour PHP.  She’s been in 10-hour since the beginning of August when she stepped down from residential.  Am I excited?  No.  Am I nervous?  No.  Am I hopeful?  Also, No.  I have no hope, I’m expecting nothing and I’m thinking about taking bets…

Back in July/August we got her braces taken off.  She’s been out of state too much to get regular care on her braces, she kept breaking them in residential.  So, we took them off.  I told her someday we would put them back on, when she’s better.  Well last night this all came to a…

Lately I’ve been feeling very defeated.  We’ve been fighting this monster for so long and we are nowhere near even having some compliance.  Every meal is a fight.  Every snack is a fight.  Taking meds is a fight.  Her current team at McCallum Place wants to start thinking about discharge.  Possibly in December.  I know…

One thing I had never heard of before McCallum was a correlation between leptin and AN.  I don’t believe my daughter has ever had her leptin levels checked before we came here.  They say there isn’t a ton of research, but their experience has been that leptin plays a role in recovery and where they…

Yesterday I met with her doctor.  It’s been a bit since we chatted, so I figured it was just a check in.  Wrong.  We did labs on Monday and her liver enzymes are high.  Like really high and a huge change from just 2 weeks earlier when we had them done.  They aren’t sure what’s…

Our first day at McCallum we were both in a meeting with her therapist and dietician and a couple of interns.  I was talking about her struggle to eat foods that I make.  Things where she doesn’t know exactly what’s in them or how they were counted or measured.  We talked about macaroni and cheese. …

4 days and 4 strikes.  I took over breakfast this week.  She has been doing ok with breakfast.  It’s really not enough food and not enough variety, but she was eating it without too much complaint.  However, we decided I would take it over and have it made and plated before I woke her up. …