This Crazy Life

We made it through Christmas.  That was a goal for me.  It wasn’t pretty, but we made it.  All 5 of us together.  We all got to open presents together Christmas morning.  It was a normal day, other than one kid doesn’t eat.  I got a picture of all 3 girls (and the 2 dogs)…

So, we went to the hospital on Sunday.  They admitted her.  And kept her until Tuesday morning.  2 days of fluids.  A day of food.  And we’re on our merry way again.  I’m afraid I took her too soon.  Because of course now she feels not sick enough because they didn’t keep her very long. …

One week.  We survived one week.   Was it good.  Absolutely not.  Are we thriving?  Definitely not.  Are we surviving?  Not even close.  Are we going to make it to Christmas?  At this point I don’t even think we’ll make it that long.  Sadly.  It’s depressing.  Very, very depressing.  She’s been making her own “food”.  If…

No, her discharge didn’t get pushed back.  Yes, they are still done with her, and we are still discharging.  But we are doing it in radio silence.  No communication.  No last talks or updates or best wishes from her team.  On Tuesday I was promised discharge paperwork instead of the updated TPU on Wednesday or…

She’s discharging from PHP this Friday.  Now don’t get excited.  She’s discharging because they don’t think they can help her.  They think she’ll end up in the hospital soon and eventually back in residential.  They actually want me to put her on lists for residential, even though they are done with her.  I’m sorry that…

I was watching a video yesterday, about anorexia, because what else would I be doing.  They were talking about new thoughts around exercise/movement and letting kids move earlier than originally thought.  Movement can be good for your mental health and help decrease anxiety.  I understand this.  We’ve been very hesitant to let her move because…

We’ve been in 6-hour PHP for just over a week now.  And she’s completed dinner approximately 0 times.  The last 3 nights have been complete refusals.  I had to take her twin sister to Minnesota for a cheer competition this week.  Not had, but I wanted to, I missed most of her cheer comps last…

As our time in McCallum’s PHP is coming to an end, we have worked to establish an outpatient team.   We met with a dietician this week that came highly recommended.  My daughter wanted me to stay in the session the entire time.  She wants to exercise.  The dietician asked how she was doing with her…

We’re getting ready to step down from 10 hour to PHP to 6-hour PHP.  She’s been in 10-hour since the beginning of August when she stepped down from residential.  Am I excited?  No.  Am I nervous?  No.  Am I hopeful?  Also, No.  I have no hope, I’m expecting nothing and I’m thinking about taking bets…