This Crazy Life

Back in July/August we got her braces taken off.  She’s been out of state too much to get regular care on her braces, she kept breaking them in residential.  So, we took them off.  I told her someday we would put them back on, when she’s better.  Well last night this all came to a…

Lately I’ve been feeling very defeated.  We’ve been fighting this monster for so long and we are nowhere near even having some compliance.  Every meal is a fight.  Every snack is a fight.  Taking meds is a fight.  Her current team at McCallum Place wants to start thinking about discharge.  Possibly in December.  I know…

One thing I had never heard of before McCallum was a correlation between leptin and AN.  I don’t believe my daughter has ever had her leptin levels checked before we came here.  They say there isn’t a ton of research, but their experience has been that leptin plays a role in recovery and where they…

Yesterday I met with her doctor.  It’s been a bit since we chatted, so I figured it was just a check in.  Wrong.  We did labs on Monday and her liver enzymes are high.  Like really high and a huge change from just 2 weeks earlier when we had them done.  They aren’t sure what’s…

Our first day at McCallum we were both in a meeting with her therapist and dietician and a couple of interns.  I was talking about her struggle to eat foods that I make.  Things where she doesn’t know exactly what’s in them or how they were counted or measured.  We talked about macaroni and cheese. …

4 days and 4 strikes.  I took over breakfast this week.  She has been doing ok with breakfast.  It’s really not enough food and not enough variety, but she was eating it without too much complaint.  However, we decided I would take it over and have it made and plated before I woke her up. …

Early on in this process I got on meds for anxiety.  They helped.  A lot.  That was all I had time for.  Now that I’m home and settling into a routine I thought seeing a real in person therapist might be beneficial.  I had looked on my insurance company’s website and started my search.  It…

We’re back again to taking baby steps.  Small steps forward.  I was in the art room at McCallum yesterday.  It was a pretty cool place.  Quotes and pictures all over the walls.  Most of them I’ve heard before during this journey but there was a new one, I really liked.  Falling down is still forward…

Through this journey I have met a lot of people.  I have really connected with two other ED mothers.  I would now consider them some of my best friends.  We can talk about anything, not just ED.  They get it.  They understand.  They remember the roller coaster of feelings I go through daily.  They help…

I think we are settling into a routine, an exhausting routine, but a routine none the less.  We’ve now had a couple of dinner passes, and she has a dinner pass for Saturday and Sunday both.  They haven’t gone amazing, but we’re home, and she’s eating.  I really like McCallum Place.  The communication is top…