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Ankle Weights
The damn ankle weights. We’ve had ankle weights in the house for years. They were asked to get them for cheer several seasons ago. They can do drills with them to condition their core and the girls used to practice their jumps on the trampoline with them on. My daughter that still cheers still uses…
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The Feeding Tube
The fourth time my daughter was in the hospital (the first time after residential) they told her if she had to come back again, they would put in a feeding tube so I could make sure she was getting enough nutrition at home. Well that time came. We went back to the hospital. And a…
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The Text that Broke my Heart (Even More)
My oldest daughter is 14 and the twins are 12. They all have phones. They also all know I can check their phones at any time. Of course, if I don’t have reason to search phones I don’t. We’ve had a lot of conversations about trust. And things are good if I can trust you,…
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1st Hospital Stay
Her first hospital stay was the beginning of June 2021. I’m sure I could get actual dates, if I looked, but beginning of June 2021 is close enough. She had her first dietician apt that morning. The dietician was the first apt I could get her in based on her age and our location and…
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Decisions
How do you know it’s time to send your child back to residential? How do you know it’s time to leave the rest of your family at home so you can go live elsewhere while your sick child does PHP? This is what I’m really struggling with currently. Her team thinks she needs a higher…
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The Hospital
Friday started out like an ordinary day. I put laundry in the washing machine, got a few things started around the house and then we headed to the city to her doctor’s apt. However, that day will now never be forgotten. She had lost weight once again. And her resting heart rate was only 53. …
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One Month
One Month. Home for One Month after PHP. That’s the longest I could keep her going. Day by day the restricting increased and my world fell apart bit by bit. We went for a medical check on a Friday morning and by Friday afternoon we had been admitted into the hospital for 5 days. One…
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Three Pieces of Celery
Our last big blow up was over 3 pieces of celery. Three. Pieces. Of Celery. She hid them in her mouth and tried to walk away from the table. I stopped her. She spit them in the trash. She said they were bad. I said no big deal I will get you 3 pieces of…
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Hiding Food
We’ve been home from PHP for almost 2 weeks now. And I’ve found food in the trash, in the washing machine and in the front yard. That’s just where I’ve found it. Who knows where I haven’t found it. Who knows how much has been eaten by our dogs. The sad thing is I watch…
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In the Beginning
We’re going to go back, way back, back to when I found out I was pregnant with twins. I will never forget this day. I went to my ob apt, alone, and was getting an ultrasound to date the pregnancy. The ultrasound tech goes look, there are two. I looked at her I’m sure with…
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This Crazy Life 