Category: Hospital
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1st Hospital Stay
Her first hospital stay was the beginning of June 2021. I’m sure I could get actual dates, if I looked, but beginning of June 2021 is close enough. She had her first dietician apt that morning. The dietician was the first apt I could get her in based on her age and our location and…
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Decisions
How do you know it’s time to send your child back to residential? How do you know it’s time to leave the rest of your family at home so you can go live elsewhere while your sick child does PHP? This is what I’m really struggling with currently. Her team thinks she needs a higher…
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The Hospital
Friday started out like an ordinary day. I put laundry in the washing machine, got a few things started around the house and then we headed to the city to her doctor’s apt. However, that day will now never be forgotten. She had lost weight once again. And her resting heart rate was only 53. …
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One Month
One Month. Home for One Month after PHP. That’s the longest I could keep her going. Day by day the restricting increased and my world fell apart bit by bit. We went for a medical check on a Friday morning and by Friday afternoon we had been admitted into the hospital for 5 days. One…
This Crazy Life 