Tag: Hospital
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And PHP is Over
They recommended a higher level of care. I knew it was coming. But I can’t do it. So we pulled her. We’re going to try it at home. Again. Worse case scenario, she’s back in residential in a month. Best case scenario she gets into recovery. More likely scenario we plug along at home for…
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PHP Round 4
And for some reason it’s really stressing me out. We weren’t going to do PHP this time. I honestly didn’t want to waste the time, energy, money, etc. But then when she said she wanted to recover I thought it would be good. I’m honestly already regretting it. My stress level is high. Her stress…
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What Do You Do When They Are Done?
She’s done. She wants to come home. She hates her team. They aren’t helping her. She’s refusing to work with them. Now don’t get me wrong, there have been several red flags. Several things I’m not sure of. But she’s eating. She’s drinking. Well, she was. Until Friday. And since then, it’s been one meal…
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Recovery by Name Alone
She wants to recover. Well she says she wants to recover so she can come home. They did an exercise and talked about how not choosing recovery just keeps you in treatment and away from home longer. So that day she decided she wants to recover. And that’s her story and she’s sticking to it. …
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She’s Done
She’s gained enough weight. She’s past her set point. If she gains any more, she’s not going to be able to do this at home. She’ll have to lose weight. But if she can come home now, she will eat at home to maintain. Nothing more. She’ll eat when she’s hungry and stop when she’s…
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Covid
Monday she started running a fever. Tuesday she felt awful. Tuesday evening she tested positive for Covid. So she’s now isolated in her room until Sunday. She says it’s the worst she’s even felt and the most pain she’s ever been in. Everything hurts. They are keeping her fever down and pain in check by…
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Lice
I think the most dreaded 4 letter word in the history of parents. Lice. Just saying it makes my head itchy. Friday, they discovered a lice outbreak at residential. I never really thought about it until I got the phone call, but really, I would guess we’re lucky that we’ve never had to deal with…
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Special Snowflake
Yesterday I got to meet with her dietician and therapist both. For almost an hour. It was nice. One of the things we talked about was her dietician’s special snowflake theory. These kids understand the concepts and can apply them to other people, but they don’t apply to them. They are special snowflakes. Like my…
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Medical PTSD
I saw a couple of posts yesterday on a Facebook group that really stuck out to me about medical PTSD and being a survivor. A lot of days I feel weak. I feel like a failure. I haven’t been able to get my daughter to get better. I’m not strong enough. Another person could have…
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Home Sick
I hate that she gets home sick. I got home sick as a child. Heck, I still get home sick as an adult. And it is no fun. I wish I could rescue her. I wish I could keep her safe at home. I wish this disease didn’t have such an awful hold on her. …
This Crazy Life 