Category: PHP
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The Feeding Tube
The fourth time my daughter was in the hospital (the first time after residential) they told her if she had to come back again, they would put in a feeding tube so I could make sure she was getting enough nutrition at home. Well that time came. We went back to the hospital. And a…
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The Text that Broke my Heart (Even More)
My oldest daughter is 14 and the twins are 12. They all have phones. They also all know I can check their phones at any time. Of course, if I don’t have reason to search phones I don’t. We’ve had a lot of conversations about trust. And things are good if I can trust you,…
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1st Hospital Stay
Her first hospital stay was the beginning of June 2021. I’m sure I could get actual dates, if I looked, but beginning of June 2021 is close enough. She had her first dietician apt that morning. The dietician was the first apt I could get her in based on her age and our location and…
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Decisions
How do you know it’s time to send your child back to residential? How do you know it’s time to leave the rest of your family at home so you can go live elsewhere while your sick child does PHP? This is what I’m really struggling with currently. Her team thinks she needs a higher…
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One Month
One Month. Home for One Month after PHP. That’s the longest I could keep her going. Day by day the restricting increased and my world fell apart bit by bit. We went for a medical check on a Friday morning and by Friday afternoon we had been admitted into the hospital for 5 days. One…
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Hiding Food
We’ve been home from PHP for almost 2 weeks now. And I’ve found food in the trash, in the washing machine and in the front yard. That’s just where I’ve found it. Who knows where I haven’t found it. Who knows how much has been eaten by our dogs. The sad thing is I watch…